Tuesday, June 14, 2011

Still persistant, this time for my Daughter

Well it has been a very long time since I posted on my blog.

Today was a very important day in the discovery of CCSVI and not only in MS patients.
My daughter, Liane, has had many symptoms of MS but was never diagnosed. She had a MRI several months ago and it showed no lesions. That did not stop her persistent mother. I have been very convinced that she had some kind of stenosis of the veins that should be looked at. Though most treatment centers are not seeing patients that do not have MS, I was able to get in contact with the Vascular Access Center (VAC) in Philadelphia and explained my suspicions about Liane. They set up an appointment for today and off we went.

The good news of the day is YES, she did have moderate stenosis in the the left and right jugular veins that were ballooned, and the Illiac vein was pancaked between the artery and the back bone. This was ballooned to 18mm and the flow was much better. Dr. Kirsch performed the procedure. We are now in the wait and see mood, as to what improvement Liane will have.

So the question of the day is, do we have to have MS to have constricted veins? I don't think so. There will be huge development is the science of veins in the next few years, and following patients that have problems with headaches, bad backs, swollen legs, blurred vision and major fatigue may also be found to have CCSVI.

I will keep you posted on her improvement that we hope will be substantial.

I on the other hand have been doing quite well and continue to benefit from my procedures. Still pushing to educate as many people as I can and to spead the word about the pros and cons of simple angioplasty and and CCSVI.

Good health to all.


  1. Janet,

    Your story parallels what I went through with my 28 year old son. In fact, he was treated right after me as I went for my second treatment. Knowing he has now been "fixed" brings me joy every day. His symptoms have totally reversed. I hope the same happens for Liane!

    You can reach me through http://www.facebook.com/ccsvi.bc if you want to connect! I started the group and am the page admin.

    Sandra Birrell

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